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Oklahoma Attorney General issued a consumer alert following 23andMe's bankruptcy filing, highlighting the risk of genetic data being sold. Why this matters: Consumers need to be aware of their rights and take proactive steps to protect their genetic information.
Even if you haven't taken a DNA test, your genetic information could be at risk due to shared DNA with relatives. Why this matters: Family members' decisions regarding DNA testing can impact your privacy and potential access to insurance.
Life insurance, disability, and long-term care policies may be affected by your DNA or a relative's DNA. Why this matters: Genetic information could be used to raise premiums or deny coverage.
23andMe, a prominent genetic testing company, has filed for bankruptcy, raising concerns about the future of its vast collection of customer data. Oklahoma Attorney General Gentner Drummond has advised consumers to take immediate action to safeguard their privacy.
With 23andMe potentially selling its corporate assets, including stored genetic data, consumers are worried about who might gain access to their information and how it could be used.
Delete Genetic Data: Log into your 23andMe account, go to Settings, and permanently delete your data. Follow the email confirmation to complete the process.
Destroy Test Sample: Change your preferences in account settings to prevent further storage of your saliva sample and DNA.
Revoke Research Consent: Withdraw consent for research through your 23andMe account settings.
Even if you haven't used a DNA test kit, your genetic information could be at risk if relatives have submitted their DNA. Shared genetic material can be traced, potentially revealing your identity and health risks. While federal law protects against health insurance companies denying coverage based on DNA, life insurance and other policies may not offer the same protection.
The Golden State Killer case demonstrated the power of DNA data in solving crimes, highlighting both the potential benefits and risks of widespread genetic information.
Q: What steps can I take to protect my genetic data if I'm a 23andMe customer?
Log into your account, delete your genetic data, destroy your test sample, and revoke research consent.
Q: Can my relatives' DNA submissions affect my privacy?
Yes, shared genetic material can potentially reveal your identity and health risks, even if you haven't taken a DNA test.
The bankruptcy of 23andMe underscores the importance of understanding the privacy risks associated with DNA test kits. Key actions you can take include deleting your data, destroying your test sample, and discussing privacy concerns with relatives who have submitted their DNA. Be aware that your genetic information could impact your access to various insurance policies.
Do you think genetic testing companies should have stricter regulations regarding data privacy? Let us know in the comments!
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